OK, so maybe I overreacted a tad with my last post assuming that Adelaide’s days were numbered. I freaked out when her condition started deteriorating again, but after increasing her steroids again, she is doing well. She is back to having a ridiculous appetite, but we’ll taper her again in a couple weeks. Her disease is strange and variable, so we never know what to expect, but she seems out of the woods again for now.

For those of you who don’t know the story, Matt was hit by a car while riding his bike to the train station on 9/30. The driver didn’t see him and made a quick right turn, taking my poor husband out in the process. I got a very scary call on my way to Falco’s school from a stranger calling from Matt’s cell phone. He said that Matt was in an accident and asked him to call me to let me know. The stranger, Tom, said that he was OK but confused, and an ambulance was on the way. Matt does not remember Tom or asking him to call me, but I’m so glad he did. I dropped Falco at school and met Matt at the emergency room. His poor head was banged up, but he was awake and oriented.

Turns out he was scraped and bruised all over and had facial fractures. He was wearing his helmet, which definitely protected him from worse head trauma, but his poor face still hit the asphalt. He needed a laceration repair on his eyebrow and ultimately surgery to correct his fracture. There are many stories about his time in the ER and rechecks and day of surgery that are outdated and unpleasant, so suffice it to say that he is recovering and doing well, all things considering.

You may remember that we have a child, Falco, who I used to tell you about, post cute photos of, etc. I will be sure to write my next post soon about how hilarious, adorable, and brilliant he is. Stay tuned.

Matt came home yesterday evening after his surgery, and he is doing well. I will get to whole the story of his accident soon, though it’s pretty old news by now. The good news is his injuries were fixable, and he is on the mend. He isn’t feeling great and still has to heal from his surgery, but hopefully the worst is behind him.

As if this wasn’t enough, I took Adelaide to the vet on Monday because she seemed a little off to me. She wasn’t exactly off balance or anything I could put my finger on, but she was acting sluggish and not herself. She passed her neurological tests, and the vets said they couldn’t see any abnormalities. She still didn’t seem quite right to me, but I assumed I was just being paranoid. Unfortunately, after another day of seeming quiet and lethargic, she had a seizure tonight. We have been tapering her meds, so it seems that her symptoms are returning at this lower dose of steroids and seizure drugs. So, it’s back to the doctor with her to see where to go from here.

We knew her disease had a grave prognosis, but her recovery was so dramatic that I was starting to think it was all a mistake and she was cured. I guess that’s what steroids can do for you. She can’t stay on high doses of steroids forever though because they are too hard on her body, so it’s unclear what the plan will be from here. At least we were expecting this and knew she may not have much time left. She has had a pretty good couple of months at home with us, and we won’t let her condition become nearly as bad as it did when this all started. I don’t mean to be too morbid, but realistically, we likely have some sad times and tough decisions ahead.

No time to write because it’s 10:30 and I’m sleepy, but I just wanted to say that pooping on the potty (by Falco) has happened, twice in the past four days!

Oh, and tomorrow morning Matt is having surgery to repair his broken cheekbone from when he was hit by a car on his bike two weeks ago. I KNOW I should have mentioned it sooner, but I’m telling you now, m’kay? He is OK but still has to get through this surgery and recovery.

That’s all the breaking news for now.